Friday, September 27, 2013

Keep on moving...

That's been my edict ever since I've been feeling better over the last few weeks!  My feet have finally shrunk back to their normal size although I still have some edema left in my ankles.  It's a little sore but nothing like it was before thankfully...  I had my monthly check up today and everything checked out OK I guess.  They just draw my blood and give me more Everolimus as I turn in the shell from the pills I had taken prior.  I'm not sure why they want them back; why in the world wouldn't I take the medicine?!  Seems silly to me but whatever...  They changed the required CT scans now from every 3-4 months to every six months which is nice.  So, I don't have to worry about a scan until January.  Hopefully after my birthday....

So, with my dogs back to somewhat normal and no infections or stabbing pains in my back I've been trying to balance taking care of my sister (helping my Mom) and trying to enjoy my relative good health :)  I'm emboldened to suck all of the nectar out of this sweet remission, I feel so blessed.  One of my dear friends Bekah is in the hospital due to complications from the stupid Hodge and while I'm aching inside knowing what she's going through, it just reminds me that relative good health is so precious, I can't take it for granted or waste any second of it!

Because of this, not to mention my bachelor status, I feel compelled to travel whenever the opportunity presents itself.  I've kinda given up on dating, it's such a racket and I'm tired of having to answer "so what do you do?".  If I'm blessed enough to meet someone who accepts my situation without having to do the whole online dating thing, great!  It's not exactly easy doing all of this on my own but unfortunately being a cancer survivor can be a lonely endeavor sometimes.  I've learned to manage however so whatever happens happens I suppose...

I wrote the above paragraphs on a plane coming down to steamy Florida to check on my place down here.  I was sitting with a couple who were a bit older than me.  The guy remarked to me as soon as I sat down that he needed to "get drunk so he could fly".  When he said that, the smell of alcohol was already permeating from his pores.  He then popped some pill along with his wife and proceeded to drink several of those little travel size whiskeys and by the time we landed he was completely tanked.  I had my headphones on for most of the flight but when I took them off, all I heard coming out of his loud mouth were F bombs every other word, ugh.  I could've handled it by just ignoring him as I was trying to do the entire flight.  Unfortunately, there were two little girls sitting behind me with their mom who had a mortified look on her face.  I had to say something...  Thankfully, his wife finally stepped in and along with a couple of other passengers joining my side, he finally shut up.  What a total jackass...  From there it was on to the tri-rail shuttle  (the tri-rail is a train that runs from Miami to West Palm beach all day long).  Unfortunately, the shuttle never showed up, great!  So, the other 3 of us who were waiting for the shuttle to the train station banded together and got a taxi to the train station which is about 15 minutes from the airport.  We left at 10:05 and the train was leaving at 10:18 -pretty hairy- but we did it walking up to the station as the train was pulling in, what a stressful but satisfying adventure!

I guess that story is a perfect analogy of my life these days, never easy but finding a way to make things happen... As one of my all time favorite basketball players said (Ben Wallace from the Detroit Pistons), if it aint rough, it aint right!

Word...

Chris

Wednesday, September 11, 2013

Cankles

Hello remaining readers, haven't written in a while, feeling the need to vent so what a better way than to release my frustrations into the blogosphere....

Life overall actually has been good, I had an opportunity to attend my cousin Jeff and his new wife Heather's wedding in Oahu.  I swam with sea turtles, jumped out of an airplane over the ocean and watched my once kid cousin marry his beautiful bride, pretty good stuff!  I also was able to raise enough money through the creation of my sister Nicole's blog and subsequent fundraising to get her back on track with therapy to help her recover from her stroke.  I have to say that August was one if the best months I've had in a long time...

With that said, the side effects and lingering effects of having so much therapy continue to take their toll on my body.  The latest issue is my feet or what were once feet and now looking more like balloons.  I had a staff infection for a while after my seventh chronic ingrown toenail was removed and I think being active in the ocean has brought it back even after a round of augmentin.  Have to go in tomorrow to my podiatrist to find out what's going on.  I haven't been able to wear shoes for two months now, this is getting old.  I've had to buy all new shoes one to one and a half sizes larger to try and prevent the toenails from growing back into my skin and no matter what I do, even as my toenails continue to get smaller and smaller from extraction, I am still dealing with this crap for the last three plus years.

If I can figure out how to deal with this, the world will be my oyster!!  I feel so blessed to have my relatively good health right now and the cancer seemingly staying away thanks to the success of the Everolimus.  Thank you Novartis for providing the drug and covering my medical expenses.  I feel fortunate to be a part of the successful arm of this experiment and honored to be participating in something that will hopefully help others down the road with difficult to treat Hodgkins.

Here's to normal sized feet the next time I write.

Sorry to gross anyone out!!  Maybe there are others out there who take Everolimus (RAD001) that have issues with chronically swollen feet?