I'm currently living with Hodgkins Lymphoma. One of my treatments included a tandem auto stem cell transplant. I described the process of how this works to my buddy Sean and he said "sounds like they're doing a Control Alt Delete on you". I thought it was as good a description as any. That seems like a long time ago but the name has stuck. I've basically had to start my life over, so please feel free to join me!
Wednesday, February 15, 2012
Smooth Sailing :)
Hork and me at Binks Forest in Wellington FL
Just wanted to quickly check in as realized it's been a while. I'm still feeling pretty well, so well that I just finished playing golf three days in a row with a buddy who came down to visit from New York. It's amazing how much better I feel this year compared to last and I'm so grateful. My back is getting stronger and stronger as well as the rest of my body. I'm still gaining weight which is great. Things quite frankly haven't been this good physically in a long time :)
I'm sad to say a fellow Hodgkins Warrior and legendary blogger Hillary St. Pierre sadly passed away I've just learned. She was very influential not only as an advocate for Hodgkins but for the problems we still have with our Health Care in this country. To highlight her impact, Hillary had 5000 hits on her blog when she passed. I'll miss her passion and fight not to mention her entertaining and enlightening posts. My sympathies for her husband and son... please feel free to check out her blog link below "Baldies Blog". Hillary will definitely be missed.
I also wanted to give a shout of support for my friend Marsha who is again struggling with her fight. Unfortunately, this is another sad insurance story. Because Marsha has been so tired and overwhelmed by her treatment, she missed a deadline turning in paperwork to her disability carrier and they canceled her insurance. Believe me, when you are feeling like crap, the last thing you want to deal with is insurance issues or administrative issues period. Why should a sick person have to deal with paperwork, phone calls, follow ups (because God knows you don't always hear back from people promptly when you leave a message). My Mom has just recently dealt with this when she first started. It makes you think that there has to be a better way we as a society care for sick people. The everyman for himself/herself shouldn't have to apply here, in other words, I just have serious issues with capitalism being combined with medicine. There has to be some kind of hybrid system where sick people aren't falling through the cracks. We aren't animals, we're humans. We should be taking care of each other. We're the greatest nation on earth, we should be able to figure out how to do this... So Marsha, I hope that you get word soon whether they'll pay for your Revlmid.
Stepping down from my soapbox, I wanted to share a creepy story, or a story about a creepy critter. Last night after getting in from grabbing some food after golf, my buddy went to put his clubs in his travel bag and as he looked down, the biggest ugliest spider I've ever seen decides to pop out of his bag. The look on his face was blank mixed with sheer terror. Because I was a little nervous myself, I do what I sometimes do in situations like that and started to laugh hysterically! Thinking on my feet however I just told him to drag the bag outside (the spider was still attached) and eventually the thing will just walk away. So, he drags the bag outside and it slips out of his hand and the spider, like a small dog jumps from the bag to the ground and bolts off over to my old oven fan. I had to get a picture of this thing, it was the biggest spider I've ever seen! Turns out it was a banana spider and apparently they're harmless. Lots of creepy critters down here in sunny Florida ;)
How would you feel knowing this guy was sleeping in your house!
Thanks again for reading and keeping up with me. I had been wanting to do a post regarding starting over and think I'll talk about that next time. Think it's time for me to take some steps to hit the reset button so to speak. Look forward to talking about that...
BTW, I almost forgot to say how good it was to see my cousin Ken when he stopped by a couple of weeks ago (I guess time has really flown...). Him and his dog Nathan made a pit stop down here on their way down to Key West for the Month. Hoping you guys are having a blast down there!
Ok, time to rest this sore body and get some sleep.
Chris
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1 comment:
Hi Chris,
Glad it is "smooth sailing" and you are feeling well!! Sounds like you are just enjoying life and the warm weather. So happy for you!
I also read Hillary's blog and was very saddened to read she had passed. She was a remarkable person and my heart goes out to her family!! Hoping your friend Marsha get things straightened out...it is infuriating to read things like this!! Things like this should NOT happen in the United States of America....you are so right!
That spider is the creepiest thing I ever saw...I would have nightmares if I found that in my house!! Glad you set him free and he is not lurking somewhere in your house!!
Hope you continue to feel well and enjoy Florida!!
Stay Strong!!
Life Is Good!!
Donna
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