So, I was approved for home infusion of IVIG after my doctor threatened (the insurance company) to admit me to the hospital... They were dragging their feet and would've had to pay for a hospital stay plus the drug if I were to be admitted. In the end, I think they made the prudent decision and ok'd the outpatient/home infusion which benefits everyone.
I thought I'd be feeling some relief already but unfortunately I still don't have any strength in my hands and need to lean on something while standing (not to mention walking like a duck!)
I re-booked my trip to New York and also planning a trip to MD Anderson in Houston to see the renowned Lymphoma specialist Dr. Younes. They have a bunch of clinical trials there that sound interesting...
That's it for now, looking forward to when I can type again as I have a lot on my mind!
5 comments:
Well, Chris you are truly amazing and I am so glad your doctor was aggressive with the insurance company and got approval for the treatment that you need. You are always in our thoughts and prayers.
Kathleen McPherson
Hi Chris -
So glad to read that you have started the treatment. Hoping it does the job quickly. :) Good news on the upcoming appointments too. Great plan.
Wishing you the best,
Gail
Hi Chris Dr. Younes was my Chris Dr. in MD Anderson, he was very positive and not giving up individual , Chris went down there for the SGN35 trial * which did work for him)at least intitally..... it was H1N1 that took him from us.
anyway I know when Chris said what if the SGN 35 didn't work Dr. Younes said there were other options and talking to another specialist in Hodgkins ( who is also one of the top) when I asked intitially your clinic or MD Anderson he said MD Anderson they have access to a great deal and are on the cutting edge .. I can tell you it is rough to get around ( the shuttle is errrrrrrg) so you would need a driver and the parking is also expensive....I was there for two months with Chris so if I can give you any info please don't hesitate to contact me through my blog
Good luck wil be thinking of you Loraine
Thinking of you....
Hoping for renewed strength.......Vx
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